Sherrie
Channel 4 (UK) premiered a new documentary “Extraordinary Teens: School of Life and Deaf” this week. The documentary follows the life of three deaf teenagers at Mary Hare School – Lewis, Fae, and Andrew.
This blog post focuses on Lewis and his cochlear implant journey because I wanted to share my thoughts – especially how there are some similarities with my journey with my cochlear implant.
Lewis is a 15 year old teenager who has been profoundly Deaf since birth. He uses BSL (British Sign Language) to communicate with his family and friends.
Mary Hare is a boarding school for deaf children in the United Kingdom. It is the largest specialist school for deaf children in the UK. Teachers do not use BSL with students at Mary Hare; they are primarily focused on speech and listening. However, students use BSL outside classes to communicate with their friends. There are a few students who do not use BSL at all.
We use the oral communication method so no use of BSL in our classes – our pupils thrive on learning to use their voice and the use of English is really important! Mary Hare School – www.maryhare.org.uk
As mentioned earlier, Lewis uses BSL to communicate. He also uses different methods of communication to communicate with people outside school and family. For instance, he asks for a train ticket to Newbury by writing it down on paper, which is then handed to the train station staff.
BSL is not encouraged in classrooms at Mary Hare, as the Principal stated that deaf children have residual hearing, and said “I see it as my job to maximise to use that little bit of hearing, and that capacity to speak, to give young people as much independence as possible”
While students do use BSL outside classes during recess, lunch, and after school hours, I find it frustrating that sign language isn’t used during classes. Research has shown that sign language really does enhance learning opportunities for deaf students as well as written and spoken English. There are so many benefits to being bilingual in both sign language and English, especially in the classroom.
Lewis stated that he has difficulty communicating with his teachers using spoken English. There was a scene in the documentary where Lewis was trying to say softener but his teacher didn’t understand him. His teacher then tried to teach him how to say hardener yet he looked away.
It can become frustrating for deaf people like Lewis when sign language isn’t used in the classroom. I’ve experienced this myself on a few occasions when I was at school where there wasn’t a teacher aide available to interpret for me. It is rather exhausting lipreading your teacher for more than 15 minutes. Lipreading isn’t easy to master; the majority of it is guesswork as you can only catch approximately 30% of what is said.
Lewis’s parents supported his decision to get a cochlear implant – they always thought it was up to him whether he wanted one. When Lewis was a baby, his mum was too scared to put him through the ordeal for a cochlear implant, because to her, he was already perfect. His mum doesn’t believe the cochlear implant is a fix for deaf people. This reminds me a lot of my mother – she left it up to me to decide if I wanted to get a cochlear implant. She trusted me to make the right decision for myself, and she’s glad she left the decision to me. As a mother, she was simply following her instincts.
One of many reasons why Lewis wanted to get a cochlear implant was to hear his own name, as he had never heard it before.
Getting your cochlear implant switched on is an emotional rollercoaster. It’s rather overwhelming. Lewis’ switch-on was very realistic – nothing like those perfect YouTube moments that has been shared everywhere on social media.
It hit home for me, as I remembered exactly how I felt at my switch-on. All those emotions. How I felt when I heard sounds for the first time. How different it sounded compared to hearing aids. I still remember it like it happened yesterday.
I loved how Lewis’ audiologist was very considerate of his reaction to the switch-on. She asked him if he needed another minute, if he was okay — she simply put him first. Lewis said he felt dizzy after the switch-on, and he asked his audiologist for permission to take his cochlear implant off. After taking it off, he said he felt better.
It’s switched on, and I cannot identify any sounds apart from a faint robotic beep. ~Lewis
Lewis did not respond well to the switch-on, so he has been told it could take years for him to fully adapt to the cochlear implant. He’s also been told he requires intensive speech therapy in order to teach his brain how to understand different sounds.
Lewis is frustrated because it’s taking him a long time to get used to the CI. Because Lewis is struggling with his hearing and speech, his behaviour becomes a problem in classes.
He caught up with his Mum on Facetime, and admits that it’s very hard and frustrating with his speech. There’s the pressure of learning new sounds, on top of being a teenager in general.
This is one of many reasons why sign language is beneficial in the classroom, particularly for deaf students. If Lewis was able to access information and communicate in BSL within the classroom, he wouldn’t have struggled so much especially with his cochlear implant.
At Lewis’s end of the year appointment, the school audiologist shows him how hard he has worked since January. There’s a vast improvement in his hearing levels, and Lewis is in disbelief. He’s happy he’s doing well.
At the Mary Hare School Leavers Prom, the Principal said: Mary Hare is about believing that you can have everything that your hearing brothers and sisters, cousins, friends and family can have too. That you’re not different. That you’re the same and you want the same thing.
In a way, I felt the principal’s statement was slightly patronising. It’s almost like he was saying if it wasn’t for Mary Hare, deaf children wouldn’t have been able to access same things as their hearing brother and sisters, cousins, friends and family can. Granted, there’s barriers everywhere in the wider community but we are more than capable of finding strategies to overcome these barriers – especially for those who primarily use sign language to communicate. There’s nothing wrong with having sign language as your preferred language. At the end of the day, we are more than capable of doing same things as everyone else.
We shouldn’t feel bad if we’re unable to speak because at the end of the day, we have a language, and that is sign language – be it Auslan, BSL, ASL, etc. There are times when I feel shit about not having the ability to speak like a proper hearing person, yet I remind myself that I have excellent English skills – and it’s all because of my mum’s commitment to making sure I had access to sign language and written English before I started school.
The documentary draws to a close with Lewis wanting to try asking for a train ticket to London Paddington without using pen and paper. After a few practices, he achieves this.
“I started this journey because I wanted to hear my own name, and now after months of work, I’m hearing new sounds every day” ~ Lewis
Like Lewis, I am learning new sounds every day. Lewis also shared his delight in being able to hear the birdsong, which is an amazing achievement! Hearing new sounds with a cochlear implant is a journey, not a race. We need to remind ourselves that we don’t need to push ourselves to learn new sounds. Just let the sounds come to you in your own time, and at your own pace. I wasn’t expecting to hear the birdsong until maybe a year after my switch-on, yet I heard it at around the 2 month mark. I was SO surprised, considering I hadn’t heard anything out of my left ear for more than a decade – and I was unable to hear high frequency sounds prior to being implanted.
All in all, I thought the documentary was fantastic. I loved how it showed Lewis’s emotions throughout his cochlear implant journey. Well done to the team at Flashing Lights and Channel 4 on a fantastically made documentary!
If you’re not in the UK, you will need to bypass the geoblock to be able to view the documentary.
Editor's Pick
Today’s the third day of Lockdown 6.0 and I’m still processing how I feel about this. I haven’t written in a while, and I thought it was high time I got back into blogging and doing what I love, writing. There’s nothing more cathartic than writing.
Given we only exited Lockdown 5.0 just over a week ago, it feels as if we haven’t been given an opportunity to fully enjoy life post-lockdown before being ushered back into lockdown. How do we process our feelings and thoughts post-lockdown? We’ve barely had the time to process the last lockdown and its impact on us as individuals.
When the announcement came on Thursday morning stating that Victoria would be going back into lockdown as of 8PM, I felt numb. I didn’t have any words to describe how I felt at the time. I thought I was okay about it, but if I have to be brutally honest, I’m not okay about it. Like everyone else, I barely had two days to get used to life post-lockdown after Lockdown 5.0 was lifted. Did I get used to post-lockdown life this time around? Probably not.
Lockdown 6.0 is due to be lifted on Thursday night, but I’m not holding my breath. Delta, a variant of COVID-19, is a sneaky fucker. The transmission rate is higher compared to other COVID-19 variants. If the Victorian Government sees the need to extend this lockdown to get the pandemic under control, then so be it. NSW is seeing case numbers in the high 200s every day, and there’s no way Victoria wants to repeat what we went through last year.
The real question remains: how do I feel about this?
Defeated. It feels like this virus is determined to keep us at home, apart from our loved ones. I’ve been living on my own for 6 months and whilst I love it, I miss being around people. Fuck, I miss hugs. Human touch. Connection.
Speaking of connection, I miss being with my fellow Deaf people. I miss getting my Deaf fix. Catching up with friends on FaceTime or Zoom is wonderful, but it doesn’t replace the feeling of being able to sign with your Deaf peers in person.
Being able to see your language in its wondrous 3D form, like it’s supposed to be.
That feeling you get when you laugh merrily with your friends. Laughing so much until you cry.
Being present with your Deaf self whilst being with others.
I’ve seen many older Deaf people reminiscence on the golden days of Deaf Clubs, and how they wish for Deaf Clubs once again. Having been through five (soon to be six because this one isn’t done) lockdowns, I can empathise with them on the loss of Deaf Clubs. Opportunities for us to get our Deaf fix are now rare.
It’s funny how you don’t realise you miss something until it’s gone…and you realise you’ve taken it for granted.
I wanted to be able to celebrate my birthday(s) with my loved ones, but I hesitated on making plans because of the uncertainty. I do still want to be able to let my hair down and hit the town at some point, to celebrate me with my loved ones.
Goddamn it, I fucking miss being with people.
As a Deaf person and professional, I also miss face-to-face appointments with Auslan interpreters. For more than 18 months, like many Deaf people who use Auslan interpreters, I’ve utilised video remote interpreting for personal or professional appointments. Whilst VRI is fantastic and has grown so much the last two years ago, I miss being able to engage with my interpreters in person. The opportunity to debrief and/or chat with the interpreter(s) afterwards is rare as hen’s teeth nowadays. These 10 minutes you get to connect with your interpreters – oh how that feels rather sentimental.
Zoom closes. Interpreter moves onto their next job. I (or other Deaf person) move onto the next task or meeting.
I do love being able to stay in touch with family and friends through social media, text messaging and video calls. It does get tiring at times – so I need to keep reminding myself that other people are doing their best to stay in touch too.
It’s also hard to stay motivated during this time, too. I’ve had to put my platform – I Sign. I Wander., and Deaf Stories on hiatus – simply because I don’t have the motivation. I also have a few personal projects planned, but I haven’t been able to find the motivation to get started.
I’ve been trying to stay kind to myself, but when things become repetitive, it gets to the point where I say “fuck this, I’m just doing the bare minimum“.
I shower, I feed myself, I go to work (at home), and I make sure I am warm and healthy. I have things I can do around the house. I have books. I have Netflix.
Until this outbreak eases, there’s not much I can do but to keep doing what I’ve been doing and to remain connected with my loved ones in ways that works the best for us.
So, to say… I still don’t know how I feel. I’m getting there though. Maybe next time I write, I’ll have a better idea. But until then, I’ll continue processing this.
See you on the flipside,
S xx
Deaf Stories was originally established with a vision of deaf people sharing their experiences as business owners. With Janelle Whalan as my filming assistant, we interviewed four deaf people – Neil Wood, Bobbie Blackson, and Ivan Callaghan & Nicole Cooke about their businesses. The first round of Deaf Stories was funded by Deaf Services’ Life Enrichment Grant which helped us to cover expenses such as travel, software, equipment and other costs associated with Deaf Stories.
After filming, editing and releasing each interview, the engagement from the deaf community I envisioned wasn’t happening. Something was missing.
I saw there was a dire need for deaf people to share their stories on a public platform. With deaf clubs disappearing from our very own eyes, where were opportunities for deaf people to share their stories in a casual and relaxing environment?
One of my favourite memories from my childhood was when deaf children from various schools across Southeast Queensland would get together for a day to celebrate Deafness Awareness Week at New Farm Park in Brisbane. Every year I wound find myself sitting with my fellow deaf peers watching Julie Lyons tell stories through Auslan and visual vernacular. The feeling of being captivated and being taken into another world through a deaf person’s storytelling skills – that was something I carried with me for so many years. I still carry this feeling with me today.
Deaf people are notorious for being excellent storytellers. This is because storytelling is a fundamental part of the deaf community. Ledwith (2011) stated that stories act as social-cultural glue, which means they define societies, cultures, and communities. Like sign language, storytelling acts as glue to bring the deaf community together.
For the second round of Deaf Stories, I was planning on reframing it to include stories from various deaf people around the country. My original plans were thrown out of the window when Australia was hit by the COVID-19 pandemic. With travel restrictions in place, this meant I was now unable to travel around the country collecting stories from deaf and hard of hearing Australians.
The first couple of weeks in lockdown, I watched numerous creators change their plans and projects. I also saw a number of friends in the arts make changes to their projects. Everything had to be moved online. That gave me the idea: why not make Deaf Stories an online platform for the deaf community watch interviews happen in real time? Give the deaf community a sense of belonging, similar to being at a deaf club. Hence the decision to reframe it as Deaf Stories LIVE.
The first Deaf Stories LIVE interview with Andrew Wiltshire was a huge success. I saw the engagement I had longed to achieve. I saw deaf, hard of hearing and hearing people respond to the interview.
Through the first interview, Andrew displayed his skills as a brilliant storyteller. According to Davis Haggerty (2007), being a skilled storyteller becomes an influential trait in the deaf community. Andrew is considered a role model to many deaf people.
Role models like Andrew are essential in the deaf community, particularly for young deaf people who are still figuring out their identities. Young deaf people should have access to role models within the deaf community, as Sutton-Spence (2010) believes it helps young deaf people to develop their personal, linguistic, and social identities.
Nović (2016) says deaf culture is founded on storytelling; it’s a culture obsessed with its own language. With the use of sign language such as Auslan, we work on the art of storytelling in various forms such as poetry, visual vernacular, sign singing, etc. It’s not something that is perfected overnight; it takes a lot of practice and consultation by our fellow deaf peers to ensure the stories are easy to understand through Deaf eyes.
Deaf people often learn best through storytelling. We are encouraged to participate through participation and understanding; belonging and confidence grows as we are listened to, valued and taken seriously (Ledwith, 2011). Without storytelling, how can change occur within the deaf community? How can we learn about the world around us? How can we connect with the deaf community using the Deaf experience?
“We tell our stories to transform ourselves; to learn about our history and tell our experiences to transcend them; to use our stories to make a difference in our world; to broaden our perspective to see further than normal; to act beyond a story that may have imprisoned or enslaved us; to live more of our spiritual and earthly potential.” ~ Rachel Freed (2011)
Storytelling empowers deaf and hard of hearing people to share their experiences; to start discussion; and to create change within the community and in the mainstream. Change doesn’t occur without sharing personal stories. Stories also encourages us to connect with and understand each other better.
I strongly believe in the power of storytelling and it’s why I chose to frame Deaf Stories around the notion of storytelling we have come to know and enjoy for many years within the deaf community.
In my next blog/vlog, I will be talking about vulnerability and why it’s an important element in storytelling.
Big love,
S x
References:
Davis Haggerty, L. (2007). Storytelling and leadership in the Deaf community. Rochester Institute of Technology, USA.
Freed, R. (2011). The Importance of Telling Our Stories.
Ledwith, M. (2011). Chapter Three: Doing Community Development in Community Development – A Critical Approach.
Nović, S. (2016). At Home in Deaf Culture: Storytelling in an Un-Writable Language.
Sutton-Spence, R. (2010). The Role of Sign Language Narratives in Developing Identity for Deaf Children. Journal of Folklore Research.
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Today’s the third day of Lockdown 6.0 and I’m still processing how I feel about this. I haven’t written in a while, and I thought it was high time I got back into blogging and doing what I love, writing. There’s nothing more cathartic than writing.
Given we only exited Lockdown 5.0 just over a week ago, it feels as if we haven’t been given an opportunity to fully enjoy life post-lockdown before being ushered back into lockdown. How do we process our feelings and thoughts post-lockdown? We’ve barely had the time to process the last lockdown and its impact on us as individuals.
When the announcement came on Thursday morning stating that Victoria would be going back into lockdown as of 8PM, I felt numb. I didn’t have any words to describe how I felt at the time. I thought I was okay about it, but if I have to be brutally honest, I’m not okay about it. Like everyone else, I barely had two days to get used to life post-lockdown after Lockdown 5.0 was lifted. Did I get used to post-lockdown life this time around? Probably not.
Lockdown 6.0 is due to be lifted on Thursday night, but I’m not holding my breath. Delta, a variant of COVID-19, is a sneaky fucker. The transmission rate is higher compared to other COVID-19 variants. If the Victorian Government sees the need to extend this lockdown to get the pandemic under control, then so be it. NSW is seeing case numbers in the high 200s every day, and there’s no way Victoria wants to repeat what we went through last year.
The real question remains: how do I feel about this?
Defeated. It feels like this virus is determined to keep us at home, apart from our loved ones. I’ve been living on my own for 6 months and whilst I love it, I miss being around people. Fuck, I miss hugs. Human touch. Connection.
Speaking of connection, I miss being with my fellow Deaf people. I miss getting my Deaf fix. Catching up with friends on FaceTime or Zoom is wonderful, but it doesn’t replace the feeling of being able to sign with your Deaf peers in person.
Being able to see your language in its wondrous 3D form, like it’s supposed to be.
That feeling you get when you laugh merrily with your friends. Laughing so much until you cry.
Being present with your Deaf self whilst being with others.
I’ve seen many older Deaf people reminiscence on the golden days of Deaf Clubs, and how they wish for Deaf Clubs once again. Having been through five (soon to be six because this one isn’t done) lockdowns, I can empathise with them on the loss of Deaf Clubs. Opportunities for us to get our Deaf fix are now rare.
It’s funny how you don’t realise you miss something until it’s gone…and you realise you’ve taken it for granted.
I wanted to be able to celebrate my birthday(s) with my loved ones, but I hesitated on making plans because of the uncertainty. I do still want to be able to let my hair down and hit the town at some point, to celebrate me with my loved ones.
Goddamn it, I fucking miss being with people.
As a Deaf person and professional, I also miss face-to-face appointments with Auslan interpreters. For more than 18 months, like many Deaf people who use Auslan interpreters, I’ve utilised video remote interpreting for personal or professional appointments. Whilst VRI is fantastic and has grown so much the last two years ago, I miss being able to engage with my interpreters in person. The opportunity to debrief and/or chat with the interpreter(s) afterwards is rare as hen’s teeth nowadays. These 10 minutes you get to connect with your interpreters – oh how that feels rather sentimental.
Zoom closes. Interpreter moves onto their next job. I (or other Deaf person) move onto the next task or meeting.
I do love being able to stay in touch with family and friends through social media, text messaging and video calls. It does get tiring at times – so I need to keep reminding myself that other people are doing their best to stay in touch too.
It’s also hard to stay motivated during this time, too. I’ve had to put my platform – I Sign. I Wander., and Deaf Stories on hiatus – simply because I don’t have the motivation. I also have a few personal projects planned, but I haven’t been able to find the motivation to get started.
I’ve been trying to stay kind to myself, but when things become repetitive, it gets to the point where I say “fuck this, I’m just doing the bare minimum“.
I shower, I feed myself, I go to work (at home), and I make sure I am warm and healthy. I have things I can do around the house. I have books. I have Netflix.
Until this outbreak eases, there’s not much I can do but to keep doing what I’ve been doing and to remain connected with my loved ones in ways that works the best for us.
So, to say… I still don’t know how I feel. I’m getting there though. Maybe next time I write, I’ll have a better idea. But until then, I’ll continue processing this.
See you on the flipside,
S xx
Deaf Stories was originally established with a vision of deaf people sharing their experiences as business owners. With Janelle Whalan as my filming assistant, we interviewed four deaf people – Neil Wood, Bobbie Blackson, and Ivan Callaghan & Nicole Cooke about their businesses. The first round of Deaf Stories was funded by Deaf Services’ Life Enrichment Grant which helped us to cover expenses such as travel, software, equipment and other costs associated with Deaf Stories.
After filming, editing and releasing each interview, the engagement from the deaf community I envisioned wasn’t happening. Something was missing.
I saw there was a dire need for deaf people to share their stories on a public platform. With deaf clubs disappearing from our very own eyes, where were opportunities for deaf people to share their stories in a casual and relaxing environment?
One of my favourite memories from my childhood was when deaf children from various schools across Southeast Queensland would get together for a day to celebrate Deafness Awareness Week at New Farm Park in Brisbane. Every year I wound find myself sitting with my fellow deaf peers watching Julie Lyons tell stories through Auslan and visual vernacular. The feeling of being captivated and being taken into another world through a deaf person’s storytelling skills – that was something I carried with me for so many years. I still carry this feeling with me today.
Deaf people are notorious for being excellent storytellers. This is because storytelling is a fundamental part of the deaf community. Ledwith (2011) stated that stories act as social-cultural glue, which means they define societies, cultures, and communities. Like sign language, storytelling acts as glue to bring the deaf community together.
For the second round of Deaf Stories, I was planning on reframing it to include stories from various deaf people around the country. My original plans were thrown out of the window when Australia was hit by the COVID-19 pandemic. With travel restrictions in place, this meant I was now unable to travel around the country collecting stories from deaf and hard of hearing Australians.
The first couple of weeks in lockdown, I watched numerous creators change their plans and projects. I also saw a number of friends in the arts make changes to their projects. Everything had to be moved online. That gave me the idea: why not make Deaf Stories an online platform for the deaf community watch interviews happen in real time? Give the deaf community a sense of belonging, similar to being at a deaf club. Hence the decision to reframe it as Deaf Stories LIVE.
The first Deaf Stories LIVE interview with Andrew Wiltshire was a huge success. I saw the engagement I had longed to achieve. I saw deaf, hard of hearing and hearing people respond to the interview.
Through the first interview, Andrew displayed his skills as a brilliant storyteller. According to Davis Haggerty (2007), being a skilled storyteller becomes an influential trait in the deaf community. Andrew is considered a role model to many deaf people.
Role models like Andrew are essential in the deaf community, particularly for young deaf people who are still figuring out their identities. Young deaf people should have access to role models within the deaf community, as Sutton-Spence (2010) believes it helps young deaf people to develop their personal, linguistic, and social identities.
Nović (2016) says deaf culture is founded on storytelling; it’s a culture obsessed with its own language. With the use of sign language such as Auslan, we work on the art of storytelling in various forms such as poetry, visual vernacular, sign singing, etc. It’s not something that is perfected overnight; it takes a lot of practice and consultation by our fellow deaf peers to ensure the stories are easy to understand through Deaf eyes.
Deaf people often learn best through storytelling. We are encouraged to participate through participation and understanding; belonging and confidence grows as we are listened to, valued and taken seriously (Ledwith, 2011). Without storytelling, how can change occur within the deaf community? How can we learn about the world around us? How can we connect with the deaf community using the Deaf experience?
“We tell our stories to transform ourselves; to learn about our history and tell our experiences to transcend them; to use our stories to make a difference in our world; to broaden our perspective to see further than normal; to act beyond a story that may have imprisoned or enslaved us; to live more of our spiritual and earthly potential.” ~ Rachel Freed (2011)
Storytelling empowers deaf and hard of hearing people to share their experiences; to start discussion; and to create change within the community and in the mainstream. Change doesn’t occur without sharing personal stories. Stories also encourages us to connect with and understand each other better.
I strongly believe in the power of storytelling and it’s why I chose to frame Deaf Stories around the notion of storytelling we have come to know and enjoy for many years within the deaf community.
In my next blog/vlog, I will be talking about vulnerability and why it’s an important element in storytelling.
Big love,
S x
References:
Davis Haggerty, L. (2007). Storytelling and leadership in the Deaf community. Rochester Institute of Technology, USA.
Freed, R. (2011). The Importance of Telling Our Stories.
Ledwith, M. (2011). Chapter Three: Doing Community Development in Community Development – A Critical Approach.
Nović, S. (2016). At Home in Deaf Culture: Storytelling in an Un-Writable Language.
Sutton-Spence, R. (2010). The Role of Sign Language Narratives in Developing Identity for Deaf Children. Journal of Folklore Research.