Categories: Deaf Stuff

Sherrie

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The world is hearing-centric, which means the majority relies on sounds and speech.  Now, there are approximately 70 million deaf and hard of hearing people around the world. Approximately 90% of deaf and hard of hearing people are born to hearing parents. The majority of these parents have never met a deaf or hard of hearing person before, which means they’re thrown a new curveball when their baby is diagnosed with a hearing loss.  Understandably so, they panic. They do not have a lived experience as a deaf/hard of hearing person. Medical professionals are not exactly helpful in this matter; instead, they tell the parents that cochlear implants will allow their deaf child to be normal and to be able to speak, and that sign language should not be encouraged as it would hinder their language development.

That, my friends, is the beginning of audism a deaf/hard of hearing person will experience from Day One on this planet.
Alex Jones of Ai-Media eloquently explains the meaning of audism in his vlog (it’s captioned if you don’t know Auslan):

I’ve experienced audism from the moment I was diagnosed with bilateral profound deafness, although the earliest memory of audism I experienced was probably at the age of 4 or 5. I’ve lost count of how many times my mum, siblings and relatives have said “I’ll tell you later” when I asked them what they were talking about. So. Many. Times. It’s incredibly frustrating; I’m sure I’ve thrown a tantrum or 3 because of my frustrations at being excluded.

A couple of years ago, I was having dinner with my paternal relatives and my aunty noticed that I was quiet, so she asked me why. I said that if I asked and I would get the same response I had gotten from many other people. I was surprised when she said “Just fucking butt in. It’s what we do. We don’t want to leave you out, so tell us to interpret for you”. Ever since then, when I catch up with them, I butt in like there’s no tomorrow and I’m now the last person to finish my dinner. It’s great, but there’s few times I feel like I’ve butted in too many times, but they have told me not to worry. To this day, I still don’t know how they encouraged me to butt in, but apparently it’s a Beaver trait to do so 😉

However, my entire family have been incredible. They’ve all learnt sign language so I am able to communicate with them. Despite being able to sign with my fam bam, I still experience audism — especially if a big family thing is happening. There’s so much talking, and I don’t bother butting in. It’s a good type of audism, if I have to say, but it does get frustrating after so long.

After 18 odd years of spending Christmas with family members, I made the decision that I would spend the festive season with like-minded people, especially if they are as fluent in Auslan as I am. As a kid, Christmas was all about presents, homemade waterslides, backyard cricket, food, cousins, and naps. It’s a lot different now. I love spending Christmas with my friends — I find I have a lot more fun and that I enjoy Christmas more as an adult.

Professionals have challenged my mum’s decision to allow me to sign. They all told her that signing would hinder my language development, as they would for many other parents of deaf children. They tried to push her into sending me to a private speech therapist. She gave them two same excuses: “I don’t have a driver’s license, and speech therapy lessons are way out of my budget” over and over until they stopped asking. I received speech therapy at school, but it was very limited and I was taken out of class for at least 2 hours per week to focus on developing my speech skills. I’ll be honest here — my speech skills aren’t on par, but I’m happy with what I have.

 

Audism often occurs at school – mainly outside the classroom. Many deaf children who prefer Auslan are unable to participate in extracurricular activities such as debating competitions because their school have constantly said they do not have the funds to provide an interpreter. God knows how many opportunities I’ve missed out on because of this. I was invited to be a part of the school debate team when I was in Year 11, but I had to pull out because the school said they couldn’t afford to get an interpreter. This was rather disappointing, as you can imagine.

However, deaf/hard of hearing kids will be able to participate in their chosen extracurricular activities outside school hours with funds from the National Disability Insurance Scheme (NDIS) paying for Auslan interpreters. This will change lives of so many deaf/hard of hearing children across Australia.

Audism mainly occurs because people do not have the lived experience as a deaf/hard of hearing person. They don’t understand what it’s like to be deaf. They don’t understand what it’s like living in a hearing-centric world. They don’t understand what it’s like encountering barriers on a daily basis.

Parents of deaf children are often faced with thousands of questions, and they think they’re doing the right in the best interests of their child, which is understandable. But…they need to keep an open mind. They need to be prepared for the day that their deaf child begins to explore their identity. They need to be prepared for the day their deaf child decides they want to embrace sign language after growing up orally.

The best thing you can do for your deaf child is to interact with other deaf people. Listen to our stories. Heed our advice based on our experiences from navigating through life as a deaf person. Allow us to become role models for your deaf child. Keep an open mind. Give your deaf child all options on the table.

Most importantly, teach your deaf child resilience so they can navigate through an audist and hearing-centric world. Resilience allows us to become empowered and to be able to advocate for ourselves. Think of resilience as a superpower — they will be able to use that to break down numerous barriers for the rest of their lives.

I think I’ve said enough for now…I could go on and on all day, but I’ll save you from reading a novel 😉

Over and out,

Sherrie x

Editor's Pick

    Today’s the third day of Lockdown 6.0 and I’m still processing how I feel about this. I haven’t written in a while, and I thought it was high time I got back into blogging and doing what I love, writing. There’s nothing more cathartic than writing.

    Given we only exited Lockdown 5.0 just over a week ago, it feels as if we haven’t been given an opportunity to fully enjoy life post-lockdown before being ushered back into lockdown. How do we process our feelings and thoughts post-lockdown? We’ve barely had the time to process the last lockdown and its impact on us as individuals.

    When the announcement came on Thursday morning stating that Victoria would be going back into lockdown as of 8PM, I felt numb. I didn’t have any words to describe how I felt at the time. I thought I was okay about it, but if I have to be brutally honest, I’m not okay about it. Like everyone else, I barely had two days to get used to life post-lockdown after Lockdown 5.0 was lifted. Did I get used to post-lockdown life this time around? Probably not.

    Lockdown 6.0 is due to be lifted on Thursday night, but I’m not holding my breath. Delta, a variant of COVID-19, is a sneaky fucker. The transmission rate is higher compared to other COVID-19 variants. If the Victorian Government sees the need to extend this lockdown to get the pandemic under control, then so be it. NSW is seeing case numbers in the high 200s every day, and there’s no way Victoria wants to repeat what we went through last year.

    The real question remains: how do I feel about this?

    Defeated. It feels like this virus is determined to keep us at home, apart from our loved ones. I’ve been living on my own for 6 months and whilst I love it, I miss being around people. Fuck, I miss hugs. Human touch. Connection.

    Speaking of connection, I miss being with my fellow Deaf people. I miss getting my Deaf fix. Catching up with friends on FaceTime or Zoom is wonderful, but it doesn’t replace the feeling of being able to sign with your Deaf peers in person.

    Being able to see your language in its wondrous 3D form, like it’s supposed to be.

    That feeling you get when you laugh merrily with your friends. Laughing so much until you cry.

    Being present with your Deaf self whilst being with others.

    I’ve seen many older Deaf people reminiscence on the golden days of Deaf Clubs, and how they wish for Deaf Clubs once again. Having been through five (soon to be six because this one isn’t done) lockdowns, I can empathise with them on the loss of Deaf Clubs. Opportunities for us to get our Deaf fix are now rare.

    It’s funny how you don’t realise you miss something until it’s gone…and you realise you’ve taken it for granted.

    I wanted to be able to celebrate my birthday(s) with my loved ones, but I hesitated on making plans because of the uncertainty. I do still want to be able to let my hair down and hit the town at some point, to celebrate me with my loved ones.

    Goddamn it, I fucking miss being with people.

    As a Deaf person and professional, I also miss face-to-face appointments with Auslan interpreters. For more than 18 months, like many Deaf people who use Auslan interpreters, I’ve utilised video remote interpreting for personal or professional appointments. Whilst VRI is fantastic and has grown so much the last two years ago, I miss being able to engage with my interpreters in person. The opportunity to debrief and/or chat with the interpreter(s) afterwards is rare as hen’s teeth nowadays. These 10 minutes you get to connect with your interpreters – oh how that feels rather sentimental.

    Zoom closes. Interpreter moves onto their next job. I (or other Deaf person) move onto the next task or meeting.

    I do love being able to stay in touch with family and friends through social media, text messaging and video calls. It does get tiring at times – so I need to keep reminding myself that other people are doing their best to stay in touch too.

    It’s also hard to stay motivated during this time, too. I’ve had to put my platform – I Sign. I Wander., and Deaf Stories on hiatus – simply because I don’t have the motivation. I also have a few personal projects planned, but I haven’t been able to find the motivation to get started.

    I’ve been trying to stay kind to myself, but when things become repetitive, it gets to the point where I say “fuck this, I’m just doing the bare minimum“.

    I shower, I feed myself, I go to work (at home), and I make sure I am warm and healthy. I have things I can do around the house. I have books. I have Netflix.

    Until this outbreak eases, there’s not much I can do but to keep doing what I’ve been doing and to remain connected with my loved ones in ways that works the best for us.

    So, to say… I still don’t know how I feel. I’m getting there though. Maybe next time I write, I’ll have a better idea. But until then, I’ll continue processing this.

    See you on the flipside,

    S xx

     

    Deaf Stories was originally established with a vision of deaf people sharing their experiences as business owners. With Janelle Whalan as my filming assistant, we interviewed four deaf people – Neil Wood, Bobbie Blackson, and Ivan Callaghan & Nicole Cooke about their businesses. The first round of Deaf Stories was funded by Deaf Services’ Life Enrichment Grant which helped us to cover expenses such as travel, software, equipment and other costs associated with Deaf Stories. 

    After filming, editing and releasing each interview, the engagement from the deaf community I envisioned wasn’t happening. Something was missing.

    I saw there was a dire need for deaf people to share their stories on a public platform. With deaf clubs disappearing from our very own eyes, where were opportunities for deaf people to share their stories in a casual and relaxing environment? 

    One of my favourite memories from my childhood was when deaf children from various schools across Southeast Queensland would get together for a day to celebrate Deafness Awareness Week at New Farm Park in Brisbane. Every year I wound find myself sitting with my fellow deaf peers watching Julie Lyons tell stories through Auslan and visual vernacular. The feeling of being captivated and being taken into another world through a deaf person’s storytelling skills – that was something I carried with me for so many years. I still carry this feeling with me today.

    Deaf people are notorious for being excellent storytellers. This is because storytelling is a fundamental part of the deaf community. Ledwith (2011) stated that stories act as social-cultural glue, which means they define societies, cultures, and communities. Like sign language, storytelling acts as glue to bring the deaf community together.

    For the second round of Deaf Stories, I was planning on reframing it to include stories from various deaf people around the country. My original plans were thrown out of the window when Australia was hit by the COVID-19 pandemic. With travel restrictions in place, this meant I was now unable to travel around the country collecting stories from deaf and hard of hearing Australians.

    The first couple of weeks in lockdown, I watched numerous creators change their plans and projects. I also saw a number of friends in the arts make changes to their projects. Everything had to be moved online. That gave me the idea: why not make Deaf Stories an online platform for the deaf community watch interviews happen in real time? Give the deaf community a sense of belonging, similar to being at a deaf club. Hence the decision to reframe it as Deaf Stories LIVE.

    The first Deaf Stories LIVE interview with Andrew Wiltshire was a huge success. I saw the engagement I had longed to achieve. I saw deaf, hard of hearing and hearing people respond to the interview. 

    Through the first interview, Andrew displayed his skills as a brilliant storyteller. According to Davis Haggerty (2007), being a skilled storyteller becomes an influential trait in the deaf community. Andrew is considered a role model to many deaf people. 

    Role models like Andrew are essential in the deaf community, particularly for young deaf people who are still figuring out their identities. Young deaf people should have access to role models within the deaf community, as Sutton-Spence (2010) believes it helps young deaf people to develop their personal, linguistic, and social identities.

    Nović (2016) says deaf culture is founded on storytelling; it’s a culture obsessed with its own language.  With the use of sign language such as Auslan, we work on the art of storytelling in various forms such as poetry, visual vernacular, sign singing, etc. It’s not something that is perfected overnight; it takes a lot of practice and consultation by our fellow deaf peers to ensure the stories are easy to understand through Deaf eyes.

    Deaf people often learn best through storytelling. We are encouraged to participate through participation and understanding; belonging and confidence grows as we are listened to, valued and taken seriously (Ledwith, 2011). Without storytelling, how can change occur within the deaf community? How can we learn about the world around us? How can we connect with the deaf community using the Deaf experience?

    “We tell our stories to transform ourselves; to learn about our history and tell our experiences to transcend them; to use our stories to make a difference in our world; to broaden our perspective to see further than normal; to act beyond a story that may have imprisoned or enslaved us; to live more of our spiritual and earthly potential.” ~ Rachel Freed (2011)

    Storytelling empowers deaf and hard of hearing people to share their experiences; to start discussion; and to create change within the community and in the mainstream. Change doesn’t occur without sharing personal stories. Stories also encourages us to connect with and understand each other better. 

    I strongly believe in the power of storytelling and it’s why I chose to frame Deaf Stories around the notion of storytelling we have come to know and enjoy for many years within the deaf community.

    In my next blog/vlog, I will be talking about vulnerability and why it’s an important element in storytelling.

    Big love, 
    S x

    References:
    Davis Haggerty, L. (2007). Storytelling and leadership in the Deaf community. Rochester Institute of Technology, USA.

    Freed, R. (2011). The Importance of Telling Our Stories.

    Ledwith, M. (2011). Chapter Three: Doing Community Development in Community Development – A Critical Approach.

    Nović, S. (2016). At Home in Deaf Culture: Storytelling in an Un-Writable Language.

    Sutton-Spence, R. (2010). The Role of Sign Language Narratives in Developing Identity for Deaf Children. Journal of Folklore Research.


Leave A Comment

  1. Shanna eyres May 24, 2016 at 10:30 pm - Reply

    Thank you so much for sharing your story, I am a student of Auslan, stories like yours helps me better understand….Shanna

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Related Posts

    Today’s the third day of Lockdown 6.0 and I’m still processing how I feel about this. I haven’t written in a while, and I thought it was high time I got back into blogging and doing what I love, writing. There’s nothing more cathartic than writing.

    Given we only exited Lockdown 5.0 just over a week ago, it feels as if we haven’t been given an opportunity to fully enjoy life post-lockdown before being ushered back into lockdown. How do we process our feelings and thoughts post-lockdown? We’ve barely had the time to process the last lockdown and its impact on us as individuals.

    When the announcement came on Thursday morning stating that Victoria would be going back into lockdown as of 8PM, I felt numb. I didn’t have any words to describe how I felt at the time. I thought I was okay about it, but if I have to be brutally honest, I’m not okay about it. Like everyone else, I barely had two days to get used to life post-lockdown after Lockdown 5.0 was lifted. Did I get used to post-lockdown life this time around? Probably not.

    Lockdown 6.0 is due to be lifted on Thursday night, but I’m not holding my breath. Delta, a variant of COVID-19, is a sneaky fucker. The transmission rate is higher compared to other COVID-19 variants. If the Victorian Government sees the need to extend this lockdown to get the pandemic under control, then so be it. NSW is seeing case numbers in the high 200s every day, and there’s no way Victoria wants to repeat what we went through last year.

    The real question remains: how do I feel about this?

    Defeated. It feels like this virus is determined to keep us at home, apart from our loved ones. I’ve been living on my own for 6 months and whilst I love it, I miss being around people. Fuck, I miss hugs. Human touch. Connection.

    Speaking of connection, I miss being with my fellow Deaf people. I miss getting my Deaf fix. Catching up with friends on FaceTime or Zoom is wonderful, but it doesn’t replace the feeling of being able to sign with your Deaf peers in person.

    Being able to see your language in its wondrous 3D form, like it’s supposed to be.

    That feeling you get when you laugh merrily with your friends. Laughing so much until you cry.

    Being present with your Deaf self whilst being with others.

    I’ve seen many older Deaf people reminiscence on the golden days of Deaf Clubs, and how they wish for Deaf Clubs once again. Having been through five (soon to be six because this one isn’t done) lockdowns, I can empathise with them on the loss of Deaf Clubs. Opportunities for us to get our Deaf fix are now rare.

    It’s funny how you don’t realise you miss something until it’s gone…and you realise you’ve taken it for granted.

    I wanted to be able to celebrate my birthday(s) with my loved ones, but I hesitated on making plans because of the uncertainty. I do still want to be able to let my hair down and hit the town at some point, to celebrate me with my loved ones.

    Goddamn it, I fucking miss being with people.

    As a Deaf person and professional, I also miss face-to-face appointments with Auslan interpreters. For more than 18 months, like many Deaf people who use Auslan interpreters, I’ve utilised video remote interpreting for personal or professional appointments. Whilst VRI is fantastic and has grown so much the last two years ago, I miss being able to engage with my interpreters in person. The opportunity to debrief and/or chat with the interpreter(s) afterwards is rare as hen’s teeth nowadays. These 10 minutes you get to connect with your interpreters – oh how that feels rather sentimental.

    Zoom closes. Interpreter moves onto their next job. I (or other Deaf person) move onto the next task or meeting.

    I do love being able to stay in touch with family and friends through social media, text messaging and video calls. It does get tiring at times – so I need to keep reminding myself that other people are doing their best to stay in touch too.

    It’s also hard to stay motivated during this time, too. I’ve had to put my platform – I Sign. I Wander., and Deaf Stories on hiatus – simply because I don’t have the motivation. I also have a few personal projects planned, but I haven’t been able to find the motivation to get started.

    I’ve been trying to stay kind to myself, but when things become repetitive, it gets to the point where I say “fuck this, I’m just doing the bare minimum“.

    I shower, I feed myself, I go to work (at home), and I make sure I am warm and healthy. I have things I can do around the house. I have books. I have Netflix.

    Until this outbreak eases, there’s not much I can do but to keep doing what I’ve been doing and to remain connected with my loved ones in ways that works the best for us.

    So, to say… I still don’t know how I feel. I’m getting there though. Maybe next time I write, I’ll have a better idea. But until then, I’ll continue processing this.

    See you on the flipside,

    S xx

     

    Deaf Stories was originally established with a vision of deaf people sharing their experiences as business owners. With Janelle Whalan as my filming assistant, we interviewed four deaf people – Neil Wood, Bobbie Blackson, and Ivan Callaghan & Nicole Cooke about their businesses. The first round of Deaf Stories was funded by Deaf Services’ Life Enrichment Grant which helped us to cover expenses such as travel, software, equipment and other costs associated with Deaf Stories. 

    After filming, editing and releasing each interview, the engagement from the deaf community I envisioned wasn’t happening. Something was missing.

    I saw there was a dire need for deaf people to share their stories on a public platform. With deaf clubs disappearing from our very own eyes, where were opportunities for deaf people to share their stories in a casual and relaxing environment? 

    One of my favourite memories from my childhood was when deaf children from various schools across Southeast Queensland would get together for a day to celebrate Deafness Awareness Week at New Farm Park in Brisbane. Every year I wound find myself sitting with my fellow deaf peers watching Julie Lyons tell stories through Auslan and visual vernacular. The feeling of being captivated and being taken into another world through a deaf person’s storytelling skills – that was something I carried with me for so many years. I still carry this feeling with me today.

    Deaf people are notorious for being excellent storytellers. This is because storytelling is a fundamental part of the deaf community. Ledwith (2011) stated that stories act as social-cultural glue, which means they define societies, cultures, and communities. Like sign language, storytelling acts as glue to bring the deaf community together.

    For the second round of Deaf Stories, I was planning on reframing it to include stories from various deaf people around the country. My original plans were thrown out of the window when Australia was hit by the COVID-19 pandemic. With travel restrictions in place, this meant I was now unable to travel around the country collecting stories from deaf and hard of hearing Australians.

    The first couple of weeks in lockdown, I watched numerous creators change their plans and projects. I also saw a number of friends in the arts make changes to their projects. Everything had to be moved online. That gave me the idea: why not make Deaf Stories an online platform for the deaf community watch interviews happen in real time? Give the deaf community a sense of belonging, similar to being at a deaf club. Hence the decision to reframe it as Deaf Stories LIVE.

    The first Deaf Stories LIVE interview with Andrew Wiltshire was a huge success. I saw the engagement I had longed to achieve. I saw deaf, hard of hearing and hearing people respond to the interview. 

    Through the first interview, Andrew displayed his skills as a brilliant storyteller. According to Davis Haggerty (2007), being a skilled storyteller becomes an influential trait in the deaf community. Andrew is considered a role model to many deaf people. 

    Role models like Andrew are essential in the deaf community, particularly for young deaf people who are still figuring out their identities. Young deaf people should have access to role models within the deaf community, as Sutton-Spence (2010) believes it helps young deaf people to develop their personal, linguistic, and social identities.

    Nović (2016) says deaf culture is founded on storytelling; it’s a culture obsessed with its own language.  With the use of sign language such as Auslan, we work on the art of storytelling in various forms such as poetry, visual vernacular, sign singing, etc. It’s not something that is perfected overnight; it takes a lot of practice and consultation by our fellow deaf peers to ensure the stories are easy to understand through Deaf eyes.

    Deaf people often learn best through storytelling. We are encouraged to participate through participation and understanding; belonging and confidence grows as we are listened to, valued and taken seriously (Ledwith, 2011). Without storytelling, how can change occur within the deaf community? How can we learn about the world around us? How can we connect with the deaf community using the Deaf experience?

    “We tell our stories to transform ourselves; to learn about our history and tell our experiences to transcend them; to use our stories to make a difference in our world; to broaden our perspective to see further than normal; to act beyond a story that may have imprisoned or enslaved us; to live more of our spiritual and earthly potential.” ~ Rachel Freed (2011)

    Storytelling empowers deaf and hard of hearing people to share their experiences; to start discussion; and to create change within the community and in the mainstream. Change doesn’t occur without sharing personal stories. Stories also encourages us to connect with and understand each other better. 

    I strongly believe in the power of storytelling and it’s why I chose to frame Deaf Stories around the notion of storytelling we have come to know and enjoy for many years within the deaf community.

    In my next blog/vlog, I will be talking about vulnerability and why it’s an important element in storytelling.

    Big love, 
    S x

    References:
    Davis Haggerty, L. (2007). Storytelling and leadership in the Deaf community. Rochester Institute of Technology, USA.

    Freed, R. (2011). The Importance of Telling Our Stories.

    Ledwith, M. (2011). Chapter Three: Doing Community Development in Community Development – A Critical Approach.

    Nović, S. (2016). At Home in Deaf Culture: Storytelling in an Un-Writable Language.

    Sutton-Spence, R. (2010). The Role of Sign Language Narratives in Developing Identity for Deaf Children. Journal of Folklore Research.